Tuesday, July 24, 2007

contributions

I've been working on contributions, the ones coming into Alex's rehab hospital and school (Blythedale childrens hospital in Valhalla,NY) and the equipment of his to give away, hopefully to the local Wheelchair Recycler here in Madison, WI. It reminds me of when Alex was first diagnosed, how we had to tell and had the hear the same things over and over.Alex was almost 4 when he was diagnosed and we spent many days with DRs testing his reflexes, which in DMD are slow or non-existant. After a few days of being "hammered" Alex went home and found a toy reflex hammer in his doctors kit and spent days on end banging doors,walls,cabbage patch kids with that hammer (tho not his sister or us). Working it all out in a direct Alex fashion. I decided then that we would try to keep the DR's out of the picture as much as we could and try to give this little boy a carefree childhood.

1 comment:

JT said...

Hi Ma, Checking in to say that I've visited the blog and that I'm excited you're doing this. Linking you to my blog. xoxo