As we started to take Alex's bed and wheelchair out of his room to give away last night, it started to storm outside. Loud lightnening and thunder and a downpour. It rained all night and continued to rain the next morning, while we loaded the van and an attached trailer with all the things Alex needed for day to day living. Things that the wheelchair recycler will use, without ever knowing Alex.
When we were done I sang Eliahu in the garage, a song sung after Shabbat praising the prophet Elijah, Eliahu was Alex's Hebrew name and he loved to hear it sung. The rain stopped and sun shone. Was it a sign that Alex thought it was ok? (and that he was happy to have some old equipment gone and a cleaner garage) Don't know but its nice to think it was.
When Jen was here she smelled his headrest. It held his scent. All these little goodbyes are sad. I will wait to do his room,just a little longer.
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About Me
- Felice
- I am a 55 year old women from NY now living in Madison WI. I have a daughter who lives and teaches in D.C. My son Alex age 24, passed away on July 12. He had Duchenne Muscular Dystrophy. I have been Alex's caretaker as his disease progressed and we spent the last 4 years spending most of our time together.
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