Today I did a Google search using Alex's name and found something that looked like a blog, with Alex's Uncles Rich's art and an entry about Alex. Rich is an architect and an artist, and had done a drawing of Alex when he was in the hospital a few years ago. Alex had seen it and didn't like it. He thought he looked weak and deformed. Alex liked to look good. There is a circle worn into the rug in front of his mirror, from the wheels of his chair, from him making sure his hair and beard and clothes were how he wanted them. Alex wanted to look like who he was, strong and capable. The picture did capture Alex at his sickest and most vulnerable, but it was not the way Alex wanted to be thought of.
Rich wrote a few words about Alex, and a few words about his brother (Alex's dad). A surprise since he hasn't spoken to anyone since Alex died. Most significantly, not his brother. He was at the funeral, but arrived late, with his his wife and son. The wife hugged everyone, but never gave any words of condolence. She questioned me about something said in the eulogy, but never said anything else. I was surprised by that, even though knowing her, I shouldn't be. It makes no sense that someone who knew Alex his whole life would have nothing to say. But the bigger shock and the bigger confusion is why Rich hasn't reached out to his brother. But he wrote the blog entry and put his artwork there as a tribute, I guess. It's not enough,and it was accidental that I found it, but there it was. A little story to illustrate a little drawing and nothing else.
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